Monday, May 29, 2006

Feeling hot, hot, hot

Again, my fella awoke at 11:00 A.M. This is beginning to pose an appetite problem I’m afraid (unfortunately not for me, though. Sharon rationalizes it as comfort food. Don't I know it!). It is 9:00 P.M. and I’ve given up on begging him to have some sort of protein. I was told that protein is essential in order to keep his strength up, but this is the food group he rejects most. I despise the role I have to assume when it comes to begging him to eat. It makes me feel as if I’m the bad guy when I enter the room with what Gilly would normally consider delicious food prepared just the way he likes it, presented as attractively as possible.

“I’m just not hungry. I feel full,” he claimed this evening. At 7:00, I started presenting small snacks to tempt him. I figured I could do the balanced meal thing in installments. He dabbled, but not enough was consumed. I tried everything in my bag of tricks to coerce him to eat, but he will not budge tonight. He needs his dinnertime medication because he has to fast for two hours before the Zofran, and then another ½ hour before the Temodal, so I had to throw in the towel. It’s difficult for either one / both of us to stay awake to ensure this happens at 11:00 and then 11:30 P.M. I gave in with voiced trepidation. He seems to eat better earlier in the day. I will try to organize his food consumption differently tomorrow.

I wonder if the dieticien will suggest some new ideas I haven't tried. We're supposed to get a call soon from the CSSS to set up an appointment. I hope it happens in good time.

Overall, considering what he is going through, Gilly seems strong. He insisted on mowing the front lawn, even though I offered, and so did John when he passed by with Stacey on their way back to Irvington. He did agree to have John empty the grass from the mowing of the back lawn. He also permitted him to start the weed wacker (sp?) for him, which John will attest was no easy task. He gave John the green light to trim the edges while he mowed. I suppose he perceived it as a man’s job. I’m not complaining, because I would have melted out there in today’s heat. Gilly actually broke a sweat, which is amazing, because he is always so cold these days. Later on, he put on a T-shirt (which he soon regretted, since the waiting room at the Jewish was air conditioned).

Speaking of air conditioning, I may not last the summer. He’s so cold and I am prone to heat rash; I suffer from the heat. It zaps my energy in a big way. I’m a winter person, and so at the first sign of heat, I am drawn like a magnet to the mountains where I am free to jump into Grand Lac Long. I swim until the chill of the lake water permeates my body. When I have to be in town during the hot weather, we usually have an air conditioner in our bedroom, one in Yaron’s room and fans going from all directions to push the cool air around the house. Can I manage without an air conditioner all summer when we are in hot and humid Montreal? I’ll do my utmost, but it won’t be easy.

The drive to the hospital today was stifling; I didn’t dare turn on the air conditioning in my black Jeep (not the best colour to choose, when the heat rises). Gilly cannot even tolerate the fan. I’d be devastated if he got sick just so I could be comfortable. So I did what I had to do; dropped him off after radiation and spent some time in IGA’s frozen food section! I’ll either get used to the heat (which would be a miracle) or set up a closed room in the house where I can escape to chill out.

10 more sessions of radiation to go.

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