Wonders of wonders

One day off and I’m getting lazy! My sweet girl did more than compose a blog entry last evening; she made my day memorable in countless ways, as she so aptly knows how to do. Best of all, she spent quiet time, ‘chilling’ with her daddy (my children rarely allow me to use their ‘lingo.’ Luckily, only Gilly gets to act as censor for his blog, so I’m home free). I stole some time to attend to my own business (laundry, work…what can I say? I’m behind on everything. I drop whatever needs doing to give Gilly my full attention so he doesn’t feel lonely or isolated. When he has someone else to keep him company, I zip about at breakneck speed, trying to catch up on life’s mundane tasks). My son topped the day off with flowers just shy of midnight. He set out to take me by surprise, and he was far from disappointed. For some reason, this Mother’s Day held special meaning. I needed a bit of coddling. My children intuitively sensed my want, and lovingly rose to the occasion, each in her / his unique manner. We were together as a family, and nothing on this earth beats that.

I would rate Gilly’s day today as good, all things considered. He awoke with his signature grin; always a positive sign. I called home at around 2:00, just as I was leaving work. He proudly announced, “I just finished eating.” What did you have,” I asked curiously. “Key lime pie,” he replied. I rhetorically asked, “Oh, you just had lunch.” “No; just pie.” I rectified that situation as soon as I walked in the door. No lunch, no pills, but he enjoyed his pie! Has my role changed or what?

We were not called for a ‘squeeze in’ root canal, so it’s off to Dr. Shapiro tomorrow as was originally scheduled (11:30 a.m.). The pain seems tolerable at the moment, so no harm done (if that blood work is still accurate 5 days after being taken).

I received a call from neurology at the Jewish this morning. Vigit mentioned that Dr. Sultanen requested a consultation the day he put Gilly back on the anti-seizure medication, and the call was a follow-up to what he obviously asked for. He certainly seems to be doing his homework, and so he continues to earn points in my books. The scratchy writing on the referral form seems to say something about anti-convulsive therapy…I may be reading into the rest, but I see words like ‘stopped,’ ‘seizure’ and a’?’ In any case, the secretary said the neurologist has no time to see Gilly, so I am to call Dr. Ted Weir or Wein (not sure) or Dr. Jeffrey Rubin. They are apparently not located at the Jewish, but collaborate as part of the team. I’m skeptical about the use of the word ‘team’ for Mohr reasons than one. It may be worth scouring the city for the best neurologist to handle Gilly’s case. I’ll cross that bridge tomorrow.

I have become master of my own schedule to some extent, now that teaching is done for the semester. There are 2 days of meetings this week, but I will attend all appointments with Gilly so as to remain abreast of key information. It’s the only way I can remain sane as the manager of this whole affair. I am very fortunate to have a wonderful group of colleagues who are willing to take the reigns at the drop of a hat. A few more weeks and I’ll be unencumbered. It’s hard to believe that through all this drama, I only missed one teaching day. Wonders of wonders, miracles of miracles…