Back where we belong
Cathy, the CSSS nurse, arrived this morning to give Gilly his B12 injection. She stayed for about an hour and caught up on all the nitty gritty details since she last saw Gilly. It is a reassuring to know that she is keeping tabs on the information surrounding Gilly’s case. She asked pointed questions, indicating that she documented everything we told her last time and is doing her utmost to remain abreast of all developments.
I mentioned the CNR program, and told her I would not need the services of the nutritionist from the CSSS, because Nelda will follow Gilly very closely. Cathy suggested that I call her anyway and tell her about the program. She may be able to collaborate with Nelda at the Jewish and follow Gilly from her end.
Marie, the nutritionist and I played telephone tag for hours, until finally we reached one another and discussed the CNR program. She asked that I offer her name and number to Nelda at the Jewish next time I speak with her, and she would be happy to follow-up from her end if Nelda deems it useful. If not, she’ll just close the case. I thought that was a generous offer.
The rest of our day was filled with protein whey smoothies. I finally got the concoction to Gilly’s liking by the second dose (he needs 4 a day). I mixed the first dose mixed into apple juice, and it was not a hit by any stretch of the imagination. Later on, Gilly accompanied me to the fruit store to choose his favourite fruits of the moment (it’s almost like he’s pregnant; certain tastes and smells turn him off, yet inconsistently so). I blended two more smoothies; one for just before dinner, and another (a different fruit combo) to be consumed upon late arrival to the country. I added maple syrup for sweetness, as I was told that sweet tastes enhance appetite and Gilly adores maple syrup. It worked. He had some trouble with the final glass once we got to the country, because his taste altered sometime after dinner, but he sipped slowly, intent on finishing it to the last drop. I think he imagines himself looking like Arnold Schwartzneger (no clue how to spell this, but I gave it a shot) when all is said and done.
I called Thi today and made next week’s physiotherapy appointments for Tuesday and Thursday morning. The plan is to come home from the country on Monday evening and return on Thursday after a marathon day at the Jewish: 8:45 physiotherapy, 9:40 blood work, 10:40 Dr. Kavan (and this usually requires long wait) and finally 2:00 Dr. Sultanen. We’ll have to pack a tent, our lunch and a thermos of smoothies, I suppose.
I forgot to mention that Thi plans to try to stimulate Gilly’s appetite by working with certain pressure points. He elaborated a bit by stating that it’s similar to acupuncture but does not involve needles. I am interested to hear more about this technique next week.
We had a lovely dinner this evening at Nitai and June’s, then packed up and zoomed back to the country. I already feel more relaxed, just knowing we’re here. Liylah's relief goes without saying.
I mentioned the CNR program, and told her I would not need the services of the nutritionist from the CSSS, because Nelda will follow Gilly very closely. Cathy suggested that I call her anyway and tell her about the program. She may be able to collaborate with Nelda at the Jewish and follow Gilly from her end.
Marie, the nutritionist and I played telephone tag for hours, until finally we reached one another and discussed the CNR program. She asked that I offer her name and number to Nelda at the Jewish next time I speak with her, and she would be happy to follow-up from her end if Nelda deems it useful. If not, she’ll just close the case. I thought that was a generous offer.
The rest of our day was filled with protein whey smoothies. I finally got the concoction to Gilly’s liking by the second dose (he needs 4 a day). I mixed the first dose mixed into apple juice, and it was not a hit by any stretch of the imagination. Later on, Gilly accompanied me to the fruit store to choose his favourite fruits of the moment (it’s almost like he’s pregnant; certain tastes and smells turn him off, yet inconsistently so). I blended two more smoothies; one for just before dinner, and another (a different fruit combo) to be consumed upon late arrival to the country. I added maple syrup for sweetness, as I was told that sweet tastes enhance appetite and Gilly adores maple syrup. It worked. He had some trouble with the final glass once we got to the country, because his taste altered sometime after dinner, but he sipped slowly, intent on finishing it to the last drop. I think he imagines himself looking like Arnold Schwartzneger (no clue how to spell this, but I gave it a shot) when all is said and done.
I called Thi today and made next week’s physiotherapy appointments for Tuesday and Thursday morning. The plan is to come home from the country on Monday evening and return on Thursday after a marathon day at the Jewish: 8:45 physiotherapy, 9:40 blood work, 10:40 Dr. Kavan (and this usually requires long wait) and finally 2:00 Dr. Sultanen. We’ll have to pack a tent, our lunch and a thermos of smoothies, I suppose.
I forgot to mention that Thi plans to try to stimulate Gilly’s appetite by working with certain pressure points. He elaborated a bit by stating that it’s similar to acupuncture but does not involve needles. I am interested to hear more about this technique next week.
We had a lovely dinner this evening at Nitai and June’s, then packed up and zoomed back to the country. I already feel more relaxed, just knowing we’re here. Liylah's relief goes without saying.
posted by Gilly at 11:08 PM
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