goodnight all
Physiotherapy at 8:45 A.M. has its merits. When we’re up and out in the early morn, the day feels much longer, which I enjoy. Gilly took a few catnaps during the afternoon to make up for those early morning hours he missed.
Gilly requested that I call Dr. Wise again, because his vision is what he describes as ‘terrible.’ I know it is an awful lot to ask, but I asked him to hang in for another couple of months, since we can expect fluctuation for a while (according to what we were told by Dr. Wise, Dr. Kavan and Dr. Sultanen). I feel as if I’m failing him; I had to explain for the umpteenth time why a new prescription would not be advisable until the situation settles a bit more (as Dr. Wise advised awhile ago). “I guess you’re right,” he agreed dejectedly. If I could do something more to ease his suffering, I would. I hope the MAB calls soon with a cancellation, because they may have some suggestions. The social worker said that they have several clients whose eyesight fluctuates, and they try to work out solutions for the particular problems people face in this area. I have great confidence in this resource. The ball is rolling, but not too quickly just yet.
Gilly now has some new weights for his home exercise program (thanks to Cheryl). Thi is gradually extending Gilly’s repertoire by adding new exercises at each visit. Our basement is beginning to resemble a gym. Now all he has to do is use the equipment ritualistically.
Picture a hill; on one side, in the upwards direction, Gilly is climbing to the top, building strength to his right side. Thi noticed a difference today in how he was able to manage the weights (more symmetrically). Tumbling down the other side is Gilly’s energy level, due to the tapering of Decadron. It’s a constant struggle to reach the top of the hill; gravity pulls him down the other side. Still, he has to push himself, in order to remain as strong as possible. Right now, I am the force behind him. My greatest wish is to have him move along on his own steam sometime soon. Have I worn this word out yet? PATIENCE, Cindy.
Our next project is to clear the perimeter of our backyard. The fence guy will not do the work unless we clear a path for him (a totally reasonable request). Will I be permitted to use the power tools? I think not! I wanted to cut the lawn today, because it is a jungle (out back especially), and all I needed was for him to either start the motor, or show me how. He’s holding out for Yaron, he told me. I guess I’m not to be trusted. It’s a big project, but I know I can accomplish it in small doses. It’ll be very hard to make headway, because the only tool I have been given license to touch is the clipper; a simple, yet rather effective hand tool. If I didn’t understand the way his mind works, I’d be downright insulted. For some reason, he has allowed Tamara to use his lawn mower in the past.
I am about to serve dinner to my beloved, because Tamara, Max and I are about to leave on our trek to Camp B’nai Brith to pick up the new man; our 18 year old son. The house will be filled with young people for a while, which always has a healing effect on Gilly.
The blog site was down earlier this evening, so I am posting late. I cannot think of an appropriate title at this hour after being in the car so long. Forgive me...
Gilly requested that I call Dr. Wise again, because his vision is what he describes as ‘terrible.’ I know it is an awful lot to ask, but I asked him to hang in for another couple of months, since we can expect fluctuation for a while (according to what we were told by Dr. Wise, Dr. Kavan and Dr. Sultanen). I feel as if I’m failing him; I had to explain for the umpteenth time why a new prescription would not be advisable until the situation settles a bit more (as Dr. Wise advised awhile ago). “I guess you’re right,” he agreed dejectedly. If I could do something more to ease his suffering, I would. I hope the MAB calls soon with a cancellation, because they may have some suggestions. The social worker said that they have several clients whose eyesight fluctuates, and they try to work out solutions for the particular problems people face in this area. I have great confidence in this resource. The ball is rolling, but not too quickly just yet.
Gilly now has some new weights for his home exercise program (thanks to Cheryl). Thi is gradually extending Gilly’s repertoire by adding new exercises at each visit. Our basement is beginning to resemble a gym. Now all he has to do is use the equipment ritualistically.
Picture a hill; on one side, in the upwards direction, Gilly is climbing to the top, building strength to his right side. Thi noticed a difference today in how he was able to manage the weights (more symmetrically). Tumbling down the other side is Gilly’s energy level, due to the tapering of Decadron. It’s a constant struggle to reach the top of the hill; gravity pulls him down the other side. Still, he has to push himself, in order to remain as strong as possible. Right now, I am the force behind him. My greatest wish is to have him move along on his own steam sometime soon. Have I worn this word out yet? PATIENCE, Cindy.
Our next project is to clear the perimeter of our backyard. The fence guy will not do the work unless we clear a path for him (a totally reasonable request). Will I be permitted to use the power tools? I think not! I wanted to cut the lawn today, because it is a jungle (out back especially), and all I needed was for him to either start the motor, or show me how. He’s holding out for Yaron, he told me. I guess I’m not to be trusted. It’s a big project, but I know I can accomplish it in small doses. It’ll be very hard to make headway, because the only tool I have been given license to touch is the clipper; a simple, yet rather effective hand tool. If I didn’t understand the way his mind works, I’d be downright insulted. For some reason, he has allowed Tamara to use his lawn mower in the past.
I am about to serve dinner to my beloved, because Tamara, Max and I are about to leave on our trek to Camp B’nai Brith to pick up the new man; our 18 year old son. The house will be filled with young people for a while, which always has a healing effect on Gilly.
The blog site was down earlier this evening, so I am posting late. I cannot think of an appropriate title at this hour after being in the car so long. Forgive me...
posted by Gilly at 11:39 PM
0 Comments:
Post a Comment
<< Home