Late to bed, not easy to rise
My husband rolled into bed at 7:00 A.M. When I announced the time, he was shocked, then admitted it must be very comfortable to sleep downstairs. My alarm went off a half hour later, and I was back to work in a jiffy.
It is actually very quiet in the early morn, and so easier to get work done. I made some headway and went into the college at around noon. I had to wake Gilly up to give him instructions, because he’s not much of a reader, especially these days. Yaron was home with him all day, so I felt a load of responsibility lift from my shoulders for those few hours.
Tamara called and offered to come over and make dinner. I looked at the time and realized I’d best get home. I called Gilly and asked him to have a snack with Yaron and take his 4:30 pill. When I arrived home, I was relived to find that my instructions had been followed to a T. Tamara came over and took the dog for a walk with Yaron. They picked up some fresh fruit on their travels. I finished preparing an easy Bar-B-Q-able supper and sat down to work a bit more.
I received a call from Brad at the CSSS and he confirmed that this week he will make the request for someone to come in around mid-day each weekday to serve Gilly lunch and ensure he takes his medication. This is like life insurance; I’m not sure when I’ll need it but it’s good to know it’s there. It’s tiring and stressful to take each day as it comes when I have to work; I need a plan, and Brad says he will get this going pronto.
Next to coordinate is the transport, and the MAB is the key (adapted transport). I hope not to have to use it often, but it’s money in the bank when I know it’s an option. We will see them tomorrow at 10:15 for Gilly’s assessment, and then that ball can begin to roll too. Red tape can be circumvented only if you persist, and I have been nothing short of persistent. I anxiously await their advice as to how to help Gilly compensate for what his brain inaccurately perceives visually.
I made an executive decision this morning and cancelled 2 of Gilly’s 3 appointments for tomorrow; it is simply too much to expect of him. He certainly needs to have his dental work completed, and the physio is crucial, but I find it too taxing on Gilly to have to zip from one place to another in one day. The physio is exhausting, especially when just coming off of chemo. He’s still at a very low energy level, all things considered.
It is actually very quiet in the early morn, and so easier to get work done. I made some headway and went into the college at around noon. I had to wake Gilly up to give him instructions, because he’s not much of a reader, especially these days. Yaron was home with him all day, so I felt a load of responsibility lift from my shoulders for those few hours.
Tamara called and offered to come over and make dinner. I looked at the time and realized I’d best get home. I called Gilly and asked him to have a snack with Yaron and take his 4:30 pill. When I arrived home, I was relived to find that my instructions had been followed to a T. Tamara came over and took the dog for a walk with Yaron. They picked up some fresh fruit on their travels. I finished preparing an easy Bar-B-Q-able supper and sat down to work a bit more.
I received a call from Brad at the CSSS and he confirmed that this week he will make the request for someone to come in around mid-day each weekday to serve Gilly lunch and ensure he takes his medication. This is like life insurance; I’m not sure when I’ll need it but it’s good to know it’s there. It’s tiring and stressful to take each day as it comes when I have to work; I need a plan, and Brad says he will get this going pronto.
Next to coordinate is the transport, and the MAB is the key (adapted transport). I hope not to have to use it often, but it’s money in the bank when I know it’s an option. We will see them tomorrow at 10:15 for Gilly’s assessment, and then that ball can begin to roll too. Red tape can be circumvented only if you persist, and I have been nothing short of persistent. I anxiously await their advice as to how to help Gilly compensate for what his brain inaccurately perceives visually.
I made an executive decision this morning and cancelled 2 of Gilly’s 3 appointments for tomorrow; it is simply too much to expect of him. He certainly needs to have his dental work completed, and the physio is crucial, but I find it too taxing on Gilly to have to zip from one place to another in one day. The physio is exhausting, especially when just coming off of chemo. He’s still at a very low energy level, all things considered.
posted by Gilly at 6:26 PM
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