Wednesday, August 16, 2006

We'll get by with a little help from our friends

No nausea today, which is a good thing. The chemo course is grueling in that it causes fatigue and affects appetite, but luckily it doesn’t create nausea, because this would lead to even further weakness. I tried an ‘Ensure’-like product the other day but Gilly found it revolting. I have decided to stick to what I know he likes over the next few days while on temodal: applesauce enriched with protein and calorie-rich smoothies laced with more protein than you would imagine. Anything else is a bonus at this point. He has to drink plenty of fluid too.

I am trying to stay cool and nonjudgmental when he turns up his nose at food. He just cannot consume what is expected / recommended, so I have to simply do the best I can. We will see the psychologist in the oncology department next Wednesday and the CNR team that same afternoon. They will guide me as to what else, if anything, I can do. I’ve read the material, tried the tricks and still feel like a failure. Imagine a Jewish mother / wife who derives pleasure from cooking nutritious meals for her loved ones not being able to reach her man’s heart through his stomach. It hurts!

Gilly had no appointments today, so we stayed at home together on separate stories, so as not to pass my germs onto him. I worked from home since I’m still under the weather. I continue to run a fever, but lower grade than yesterday. My ear is hurting me this evening, so perhaps I have an ear infection; the source of the problem, or a secondary infection??? Who knows? I haven’t heard back from the doctor regarding the strep test results, so it could be that I have any number of things. He said it will take 24 to 48 hours. I wear a mask when we’re in the same room and sleep in separate quarters.

I hope to return to work tomorrow, and then relocate up north for the weekend. It all depends on how I feel. I’m in no mood to push myself in any particular direction, so I will go with the flow of my body. It is screaming at me at this very moment.

Jerry will drop Gilly at physio tomorrow afternoon (we’ve switched Thursdays to later in the day, in case I have to do both drop off and pick up while working. It’s more feasible for me at that time). I plan to pick Gilly up on my way home from work, if all goes according to plan. If I am unwell, Jerry is waiting in the wings to assist with the journey home.

Everything is tentative these days. I have to remain calm and things will work out. The support we have is truly amazing. I’m holding a whole hand of trump cards, and will reserve them to use at my discretion. I have faith that we’ll get through these months of chemo treatment somehow. Yaron returns from camp on Thursday, and this will be a big help and is sure to make the atmosphere more jovial.

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