Losing perspective
Gilly was in good spirits last evening, relatively speaking, and so he joined us for supper, then bid us goodnight. We saw a movie after all. The story focused on the theme of ‘dancing’. I couldn’t help but remember how much Gilly loved to dance, and what an excellent dancer he was. One of the first eerie signs that something was terribly wrong surfaced at Daniel’s bar Mitzvah in Toronto last February; Gilly was totally unable to dance.
I was up bright an early preparing for the yard crew this morning; Cathy and her gang came by to help saw and cut and trim some more foliage to make room for the famous fence. Aside from a walk with Sharon, I spent the better part of the day out in the garden bagging away. I lost count of the yard bags we filled. Yael and Elana helped later this afternoon. I was thrilled to have the help and most of all the upbeat company.
Gilly spent most of his time indoors. He did not seem quite as cheerful as yesterday, but remained awake for most of the daytime hours. This is a huge improvement over last week’s sleepiness, so I’m estimating that he’s either continuing to move further uphill or, at the very least, holding his own. When you live with someone, it is harder to detect the little changes sometimes; I often feel I lost perspective.
Tomorrow he will go to physio at 8:45 (I’ll drop him off) and is scheduled to arrive back home at about 10:00 (thanks mom). Yaron will be home to greet Jennifer from the CSSS at 11:30. I hope this works out well. While all this is going on, I will be at work, trying to focus on necessary tasks. Unfortunately, I will have to pursue Dr. Kavan, to try and pin him down so that we can get some answers. This is necessary, but difficult to accomplish while at work. I have some leeway with my schedule on Mondays, so hopefully I will manage to swing it; enough is enough!
Again, I will not promise to post again until Thursday or Friday, so have a great weekend; think positively and send those vibes our way.
I was up bright an early preparing for the yard crew this morning; Cathy and her gang came by to help saw and cut and trim some more foliage to make room for the famous fence. Aside from a walk with Sharon, I spent the better part of the day out in the garden bagging away. I lost count of the yard bags we filled. Yael and Elana helped later this afternoon. I was thrilled to have the help and most of all the upbeat company.
Gilly spent most of his time indoors. He did not seem quite as cheerful as yesterday, but remained awake for most of the daytime hours. This is a huge improvement over last week’s sleepiness, so I’m estimating that he’s either continuing to move further uphill or, at the very least, holding his own. When you live with someone, it is harder to detect the little changes sometimes; I often feel I lost perspective.
Tomorrow he will go to physio at 8:45 (I’ll drop him off) and is scheduled to arrive back home at about 10:00 (thanks mom). Yaron will be home to greet Jennifer from the CSSS at 11:30. I hope this works out well. While all this is going on, I will be at work, trying to focus on necessary tasks. Unfortunately, I will have to pursue Dr. Kavan, to try and pin him down so that we can get some answers. This is necessary, but difficult to accomplish while at work. I have some leeway with my schedule on Mondays, so hopefully I will manage to swing it; enough is enough!
Again, I will not promise to post again until Thursday or Friday, so have a great weekend; think positively and send those vibes our way.
posted by Gilly at 9:01 PM
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