Temporarily out of order?
I woke Gilly at 9:00 a.m. to take his medication. I try to keep the weekday routine going during the weekend. He couldn’t go back to sleep, and so was ready and waiting when his cousin Barb from Toronto arrived for a visit. He cherished the time they spent together. He smiled more in that one hour than he has for the past week. He was honest when he had had enough, and promptly excused himself.
Gilly was so shaky by lunch time that I actually fed him part of his lunch. I made the offer with trepidation, and was devastated when he agreed. He managed on his own for the rest of the day in terms of eating (although he ate very little), so it may have been a temporary lapse in functioning. I called the pharmacy yesterday to gather more information on the combination of meds he is taking, and the druggist explained that it takes time for someone in Gilly’s condition to adjust to new medication. He started a new type about a week ago, around the same time as his Dilantin was increased. These two measures at once can affect him for awhile. It’s frightening, even downright shocking to think that he may have reached the stage where he needs help to eat. He attempted to finish lunch on his own, but could only do so from a standing position.
He is certainly out of sorts these days. It’s a good thing that we are scheduled to see the CNR team on Wednesday and the oncologist on Thursday. Perhaps we can get down to the bottom of the problem. I wonder if he ought to be taken off the new medication since it's causing problems for him. It is supposed to enhance appetite, but nothing all that miraculous has occurred. This morning he admitted to hunger as I was preparing his toast, so perhaps the desired effect is kicking in slowly. The side effects may outweigh the positive results in the long run. If so, we’ll chuck them out the window.
I managed to get a walk in with Sharon and Rosanne this afternoon, and I went to the movies with Susie, Joey and Noam this evening. Yaron did some daddy patrol, which allowed me to get a much needed break. I continued clearing the yard throughout the late afternoon in anticipation of the fence installation for the remainder of the day. Between walks, visits and the movies, I managed to fill only three yard bags. The jungle is beginning to look rather tame these days, I must say.
I sincerely hope that Gilly will feel up to attending the cousins’ club tomorrow afternoon, if even for a short guest appearance. He gets out so rarely nowadays outside of medical appointments. The change of venue may prove to do him some good; it’s worth a try.
Gilly was so shaky by lunch time that I actually fed him part of his lunch. I made the offer with trepidation, and was devastated when he agreed. He managed on his own for the rest of the day in terms of eating (although he ate very little), so it may have been a temporary lapse in functioning. I called the pharmacy yesterday to gather more information on the combination of meds he is taking, and the druggist explained that it takes time for someone in Gilly’s condition to adjust to new medication. He started a new type about a week ago, around the same time as his Dilantin was increased. These two measures at once can affect him for awhile. It’s frightening, even downright shocking to think that he may have reached the stage where he needs help to eat. He attempted to finish lunch on his own, but could only do so from a standing position.
He is certainly out of sorts these days. It’s a good thing that we are scheduled to see the CNR team on Wednesday and the oncologist on Thursday. Perhaps we can get down to the bottom of the problem. I wonder if he ought to be taken off the new medication since it's causing problems for him. It is supposed to enhance appetite, but nothing all that miraculous has occurred. This morning he admitted to hunger as I was preparing his toast, so perhaps the desired effect is kicking in slowly. The side effects may outweigh the positive results in the long run. If so, we’ll chuck them out the window.
I managed to get a walk in with Sharon and Rosanne this afternoon, and I went to the movies with Susie, Joey and Noam this evening. Yaron did some daddy patrol, which allowed me to get a much needed break. I continued clearing the yard throughout the late afternoon in anticipation of the fence installation for the remainder of the day. Between walks, visits and the movies, I managed to fill only three yard bags. The jungle is beginning to look rather tame these days, I must say.
I sincerely hope that Gilly will feel up to attending the cousins’ club tomorrow afternoon, if even for a short guest appearance. He gets out so rarely nowadays outside of medical appointments. The change of venue may prove to do him some good; it’s worth a try.
posted by Gilly at 10:14 PM
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