Ups and downs
Last night went smoothly and I managed to sleep a bit more.
Gilly has a tremendous appetite lately, especially at dinnertime. It’s either the Decadron talking or he’s gone back to appreciating my cooking; I would be lying if I said I could care less which.
He fell once this evening due to extreme stubborn behaviour. I can’t blame him for wanting his independence, but lifting him up from the floor is becoming more and more difficult. He literally defied me and refused my help.
I went out this afternoon to rent a transport wheelchair for the meantime because he needs a place to rest his feet, for goodness sakes. I shopped around a bit and will make a decision in the very near future. The O,T, from the CSSS is planning to call Lethbridge tomorrow to tell them to put a rush on the one they’re customizing specifically to his measurements.
I asked for all sorts of supplies from the CSSS to adapt the bathroom upstairs as well, yet in a more removable, temporary manner, since I am still vacillating as to where he should be located. There are pros and cons to each of the two levels of our home; most importantly we have to think of safety, but quality of life for Gilly is a close second. They’re pretty much neck in neck actually. What was not available from the CSSS, I purchased myself, so we’re all set.
We have our appointment with Dr. Lapointe tomorrow. I am anxious about it. I hope they have helpful advice for us in terms of tricks for coping with the home situation. The home environment seems the best alternative, and I want to know how to manage it as best I can.
It will be tricky getting Gilly out of the house tomorrow, but between Jerry, Elizabeth and me, he’ll be in good hands. We’ll take it slowly and carefully. The ramp is the next major project. I’m working on gathering information and then making a choice. There are several options to consider based on all sorts of variables.
I wonder if wheel chairs have snow tires???
I walked into my office this morning and gasped. There was an enormous basket of fruit on my desk, so heavily laden with fruit and other goodies, I couldn’t lift it myself. A few students came rushing in when they heard my gasp and found meunable to maintain my ‘educator’ composure. All the early childhood students who have had me as their course instructor, along with a few who still have not, contributed to this awesome basket accompanied by an extremely generous coupon for pizza. They each wrote a note to me wishing me strength and courage, encouraging me in all sorts of ways and assuring me that they are praying for me and my family. The waterworks overflowed; I had trouble pulling myself together. I was moved so deeply that I wanted to hug each one, but I had to get on with my day, so I caught just a few (knowing full well I would find a way to thank each and every student). That’s my style; one foot in front of another…I keep on going, because if I take too much time to ponder over my situation I will simply melt into tears and drown in my pain. One of my colleagues caught me just in time and helped me gather myself.
I probably sound repetitive, but obviously there is a pattern to our situation. The cycle continues…we reach an impasse and the stress level rises. It seems frightening and next to (but not quite) impossible to deal with. Somehow we wake up the next day and solutions magically appear...until the next hurdle.
Gilly has a tremendous appetite lately, especially at dinnertime. It’s either the Decadron talking or he’s gone back to appreciating my cooking; I would be lying if I said I could care less which.
He fell once this evening due to extreme stubborn behaviour. I can’t blame him for wanting his independence, but lifting him up from the floor is becoming more and more difficult. He literally defied me and refused my help.
I went out this afternoon to rent a transport wheelchair for the meantime because he needs a place to rest his feet, for goodness sakes. I shopped around a bit and will make a decision in the very near future. The O,T, from the CSSS is planning to call Lethbridge tomorrow to tell them to put a rush on the one they’re customizing specifically to his measurements.
I asked for all sorts of supplies from the CSSS to adapt the bathroom upstairs as well, yet in a more removable, temporary manner, since I am still vacillating as to where he should be located. There are pros and cons to each of the two levels of our home; most importantly we have to think of safety, but quality of life for Gilly is a close second. They’re pretty much neck in neck actually. What was not available from the CSSS, I purchased myself, so we’re all set.
We have our appointment with Dr. Lapointe tomorrow. I am anxious about it. I hope they have helpful advice for us in terms of tricks for coping with the home situation. The home environment seems the best alternative, and I want to know how to manage it as best I can.
It will be tricky getting Gilly out of the house tomorrow, but between Jerry, Elizabeth and me, he’ll be in good hands. We’ll take it slowly and carefully. The ramp is the next major project. I’m working on gathering information and then making a choice. There are several options to consider based on all sorts of variables.
I wonder if wheel chairs have snow tires???
I walked into my office this morning and gasped. There was an enormous basket of fruit on my desk, so heavily laden with fruit and other goodies, I couldn’t lift it myself. A few students came rushing in when they heard my gasp and found meunable to maintain my ‘educator’ composure. All the early childhood students who have had me as their course instructor, along with a few who still have not, contributed to this awesome basket accompanied by an extremely generous coupon for pizza. They each wrote a note to me wishing me strength and courage, encouraging me in all sorts of ways and assuring me that they are praying for me and my family. The waterworks overflowed; I had trouble pulling myself together. I was moved so deeply that I wanted to hug each one, but I had to get on with my day, so I caught just a few (knowing full well I would find a way to thank each and every student). That’s my style; one foot in front of another…I keep on going, because if I take too much time to ponder over my situation I will simply melt into tears and drown in my pain. One of my colleagues caught me just in time and helped me gather myself.
I probably sound repetitive, but obviously there is a pattern to our situation. The cycle continues…we reach an impasse and the stress level rises. It seems frightening and next to (but not quite) impossible to deal with. Somehow we wake up the next day and solutions magically appear...until the next hurdle.
posted by Gilly at 10:21 PM
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