Party girl
Gilly spent yesterday afternoon and evening entertaining guests (all family) and he went to sleep without even flinching with regard to the location. He was always great at adapting to new places. I often marveled at this ability to jump off an aircraft in a far off place and make himself at home.
Tamara and Max made the switch; they moved the bed from my office (Tamara’s old room) to Gilly’s new sleeping quarters. This allows me the chance to spend time with Gilly there as his time in bed gradually escalates. I spent the morning there with him as he had his breakfast and wet back to sleep. I slept in my own bed during the night because I needed that comfort very badly.
I went off to a Chrismikah party last night as the furniture was shifted. It was great to see the LDAQ gang again. I haven’t volunteered since February, but I still manage to get to the parties. I guess I’m just a party girl.
Gilly’s ability to stand has worsened today. We landed up huddled together on the floor in the living room as I tried to guide him to the easy chair and he simply couldn’t hold his weight at all. It was a slow slumping of bodies, so neither one of us was hurt, but my back tells me that getting him up and on that chair was more than my back could handle. I will have to minimize the transfers of this nature myself.
Brad called and suggested I spread out the 14 hours of CSSS home care (which begins next week) to help me at key points in the day, everyday, even on weekends. I promised to think about what would be the best schedule and inform him on Monday. After the slumping incident, I realized that I need some instruction on proper lifting; I must take all the help I can get in this regard, so as not to end up immobile. That would not be smart; not ever, but especially not now. Yaron is strong, and so when he’s home, he will make the transfers (as he successfully did a few moments ago).
His right leg is very stiff today and his foot is curled up. I cannot even get it to rest on the foot rest (now that we finally acquired one; ironic, isn’t it?). He slips down to almost a lying position when in the armchair now. He cannot sit on regular furniture anymore without some support (and I have no idea what that would be). He is safest in bed or in the wheel chair at this point.
It’s heart wrenching to watch the slow progression in a downward direction. Luckily, his spirits are still up, his appetite is still there and he enjoys having people visit and speak to him over the phone (albeit one-sided). His facial reactions tell me that he understands what we say, and he continues to grab me for a hug when I lean over him to adjust the brake on his wheel chair. I sense that he is more ‘with it’ these days than he has been of late. We are enjoying our time together.
We’ll be 12 for Shabbat dinner. It’s a pot luck effort of the very finest; Tamara’s shopping and preparation, my taking out frozen leftovers to warm and Debbie’s spaghetti sauce. Auntie Ruth just arrived, so it’s time to sign off and enjoy the company.
Tamara and Max made the switch; they moved the bed from my office (Tamara’s old room) to Gilly’s new sleeping quarters. This allows me the chance to spend time with Gilly there as his time in bed gradually escalates. I spent the morning there with him as he had his breakfast and wet back to sleep. I slept in my own bed during the night because I needed that comfort very badly.
I went off to a Chrismikah party last night as the furniture was shifted. It was great to see the LDAQ gang again. I haven’t volunteered since February, but I still manage to get to the parties. I guess I’m just a party girl.
Gilly’s ability to stand has worsened today. We landed up huddled together on the floor in the living room as I tried to guide him to the easy chair and he simply couldn’t hold his weight at all. It was a slow slumping of bodies, so neither one of us was hurt, but my back tells me that getting him up and on that chair was more than my back could handle. I will have to minimize the transfers of this nature myself.
Brad called and suggested I spread out the 14 hours of CSSS home care (which begins next week) to help me at key points in the day, everyday, even on weekends. I promised to think about what would be the best schedule and inform him on Monday. After the slumping incident, I realized that I need some instruction on proper lifting; I must take all the help I can get in this regard, so as not to end up immobile. That would not be smart; not ever, but especially not now. Yaron is strong, and so when he’s home, he will make the transfers (as he successfully did a few moments ago).
His right leg is very stiff today and his foot is curled up. I cannot even get it to rest on the foot rest (now that we finally acquired one; ironic, isn’t it?). He slips down to almost a lying position when in the armchair now. He cannot sit on regular furniture anymore without some support (and I have no idea what that would be). He is safest in bed or in the wheel chair at this point.
It’s heart wrenching to watch the slow progression in a downward direction. Luckily, his spirits are still up, his appetite is still there and he enjoys having people visit and speak to him over the phone (albeit one-sided). His facial reactions tell me that he understands what we say, and he continues to grab me for a hug when I lean over him to adjust the brake on his wheel chair. I sense that he is more ‘with it’ these days than he has been of late. We are enjoying our time together.
We’ll be 12 for Shabbat dinner. It’s a pot luck effort of the very finest; Tamara’s shopping and preparation, my taking out frozen leftovers to warm and Debbie’s spaghetti sauce. Auntie Ruth just arrived, so it’s time to sign off and enjoy the company.
posted by Gilly at 7:22 PM
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